Other than the formula ordeal, we had minimal excitement in the ER. Jaime only got 2 IV sticks to place his IV today. I asked the dr. to have the nurses place a line rather than just infuse Jaime. She knows me and agreed that I could take care of Jaime at home. They put the line in and I infused him. The nurses were all in the room watching me...it was the first time they had ever seen Factor being infused, yep, that's exactly how rare hemophilia is. The IV flushed well tonight before Jaime's bed time, I'm hoping it stays in so that we don't have to go back to the ER for another one! Just TWO MORE DAYS! ;)
Another place we went today was the pediatrician. Jared had his "well visit" today. He's 69lbs and 51 inches tall! That translates to 85-90% for weight and 60% for height! I laughed and told his pediatrician that we're not used to seeing such high percents. Jared's usually around 50% and Jaime, well, we're lucky if he's 20%. Jared's vision is slightly off....the left eye more than the right. It's something that we're going to have watch. On a random note...the boys' pediatrician told me that she had all of Jaime's results that were in from Cincinnati. WOW! That was super fast! See, that's why we love Cincinnati! :)
In other news....just to add to a bizarre week, my mom hurt her finger. I took her to Urgent Care this evening (and her friend met us up there). Turns out she has a "mallet finger" and needs to see a hand specialist. It's currently splinted.

After Urgent Care, we had to meet Jaime's social worker because as of today they are required to see their patients within 3 days of discharge. We love her, so we don't mind, it was just another weird thing to add to our week! The best part was where we met her there was an AT&T Store...Jaime was FREAKING OUT! It was super cute...and yes, I've got pics! See below! That boy and his AT&T fascination! I'm going to call AT&T and have them use him as their new official spokesman! He LOVES it! :)





I'll conclude with positive thoughts that the IV stays functional so that Jaime doesn't get anymore pokes! He's already had 20 needle pokes in 5 days, I think he's good for a while!
Until next time!

Hi
ReplyDeleteMy name is Jenna and I came across your site. Jaimie is a real courageous, strong, determined fighter. He is a brave warrior, smilen champ and an inspirational hero. I will be praying for him and keeping him in my thoughts. I was born with a rare life threatening disease, and I love it when people sign my guestbook. www.miraclechamp.webs.com