ER/Admit/Discharge/Glasses

Yup, a lot has happened in a week since my last post!
In the wee hours of the early morning on Wednesday, Jaime started vomiting blood. We immediately took him to the ER. (Thanks, Scott, Mom & Dad for taking care of Jared for us!) While the ER dr. was assessing Jaime and asking us what his vomit looked like, Jaime threw up blood again...at which time, the ER dr. casually got up, stopped the assessment and said, "I'm going to make some phone calls." I said, "we're going home, right?" (obviously knowing full well that Jaime would be admitted....you don't send a hemophiliac vomiting blood home!) The nurses started an IV line, I administered his Factor and he was critically care transferred to The Cleveland Clinic. He was given Factor and Amicar for his hemophilia and put on a monitor. We consulted with hematology and GI. Everyone decided to just load him up on hemophilia meds and watch him. He did OK, and was discharged late last night. He's very pale and anemic at this point and in addition to his hemophilia meds (he still has his IV for Factor infusions), he has to take iron supplements. We went to his pediatrician today who said that it will take him at least 6 weeks (probably longer) to recover from this. The GI drs. believe that his bleeding was directly related to his procedure last week. See, Jaime came home from Cincinnati and had an IV placed for additional Factor. He received 2 doses a day for 3 days. Monday morning, his home IV clotted and I had to pull it. I spoke to the hem/occ at Cincy who said as long as he wasn't actively bleeding we could keep the IV out. Jaime was NOT bleeding at the time. Then, Tuesday night/Wednesday morning the vomiting started. Like I said, he's OK, not perfect, but he's HOME...again! He is having black (old blood) stools and he threw up today, but there was no blood thank goodness! Here's hoping we stay home and don't have to be readmitted.
So, as I mentioned earlier, we saw Jaime's pediatrician today. I just wanted someone who knows him well to eyeball him and give me her opinion on things. While there, she told me that she received all of Jaime's reports from Cincy. While on the subject, Jaime's drs. in Cincy have been fully aware of his admit in Cleveland. Today, the dr. who did Jaime's manometry studies called me. He's soooooooo nice! He told me that Jaime does indeed have some motility issues in addition to his distended colon. He said that he was going to talk to Jaime's GI in Cincy and see about putting Jaime on a medication to speed up his bowels a bit. He also made it clear that Jaime needs to continue working on feeds and chewing. Basically, he said that Jaime has several issues going on with his digestive system and adding an additional medication will only solve some of it, but until he can learn to chew normal, he can't fully have "normal" digestion. So, we're just hanging tight for now to see what Jaime's Cincy GI wants to do.
In other Jaime news...we went to the eye dr. today. I took Jaime to a Rainbow's dr. for a 2nd opinion because I felt like his CCF dr. wasn't being proactive enough and to be honest, he kind of ticked me off during our last visit-we waited nearly 3 hours and he came in and spent 3 minutes with Jaime and said he was great. Well, anyone that knows Jaime, knows that he has had eye issues for a long time. Jaime's pediatrician referred us to the dr. that we saw today. He said that Jaime needs glasses. So, late this afternoon after lots of phone calls to optical stores trying to find someone that took Jaime's insurance, we found a store! Jaime was sooooooooo excited to try on his glasses (not sure why), but we picked out a wire frame for him. Actually, we were told (by several stores) that we had a very limited selection due to his size and age and that wire frames were the best for him. He looks super cute in them. They should be ready in the next week or 2. We're due back to the ophthalmologist in 3 months to see how it's going.
So, that's the latest, never a dull moment here!