Time flies when you're having fun.

Here I go again...waiting over a month to post an update! (Bad Mommy!)
Well, we've been to Cincinnati and back home again. Jaime saw all of this "favorite" physicians in Cincy. Overall Jaime looks "good." We saw GI and Surgery. We have Jaime on his 1.5 Calorie Pediasure, he's supposed to be drinking 3-5 cans a day, but we're not quite there yet. When in Cincy, Jaime was weighed at 32lbs and was 3'2". He was around 50% for weight and 60% for height. The problem with Jaime is that he's very inconsistent. By the time we got home from being away for nearly 2 weeks, Jaime had already lost 1 pound. The plan given to us in Cincy was to feed Jaime every 2 hours. Of course in the "real" world, this is next to impossible because Jaime takes at least 30-45 mins to eat each meal. We were also told to put him on a "Laxative Diet." This basically is anything high fiber and liquids...staying away from binding foods like cheese (his favorite). This has been very difficult because Jaime still eats what he wants, we can't "force" him to eat anything. He still has difficulty with not digesting foods and still throws up or gets "backed up" (or both at the same time!) We still have lots of enemas and suppositories in our world, as well as laxatives. I'm thinking none are going to go away for a long time! We are not making plans for a gtube at any point unless he falls drastically down, we're due in a weight check in September.
As for the surgeon...well, we talked about fixing Jaime's incisional hernia. The goal is to get Jaime potty trained in the next year. (This is VERY difficult when he's not "regular" and when he's not drinking.) If we can get him trained, then we may not fix the hernia, but if we can't, then we're going to talk about fixing it. It MAY be one piece to the digestive puzzle since the hernia allows for his intestines to be displaced, especially when he's full. We'll just have to wait and see! (Seems like that's ALWAYS the "plan" for Jaime!)
We saw Jaime's hematologist during our visit, too...and had LOTS of labs done. All the labs came back good. (Jaime "good" not "normal" good!) We are going to continuing treating him episodically, meaning he will only receive his IV Factor when he has a bleed or is post-op. The big change is that since we've learned that Jaime is a big bleeder, when he does have a procedure or surgery, he will be treated much longer to ensure that he doesn't become so anemic again.
Which brings me to my next point...DENTAL! UGH! Who likes the dentist anyway?!? Actually, the dentist that we saw was very nice...and pretty blunt. I told him that in Cleveland our dentist told us that Jaime would need extractions, fillings or root canals...or a combination of them all. The Cincy Dentist said, "YEP!" He said he won't know what will happen until he gets Jaime to the OR to do a full assessment. Jaime will be having his dental surgery in Cincinnati...at some point and he will be admitted. (Not a routine thing, but since Jaime's a big bleeder, he needs to stay!)
Speaking of bleeding...Jaime is supposed to be getting orthotics...any day now. If you recall he bruised very badly from his first set of orthotics. They were supposed to be made differently this time so that he doesn't bruise. The leg braces are for Jaime's habitual toe walking. The PT in the Hemophilia Treatment Center did an assessment on him, she's thinking that they won't help much because he's so strong (his home PT said the same thing.) Both girls have measured his rotation as being tight, but he compensates so well. (Darn that kid! ;)

Jaime losing it in the doctor's office after being there for 4+ hours.

OK on to fun stuff! While in Cincinnati, I had the pleasure of hosting a CDH Family Picnic with Bev Luken. Bev was my rock (still is) in Cincy! We had so much fun planning the picnic and it was so neat to hang out with other CDH Families. We all share a bond that is unlike any other. Below is a picture of some of the CDH Families that were at our picnic. I can't wait to do it again next year! I also can't wait to see some of my CDH friends again...hopefully this fall in Toledo! :)

After the picnic, we took Jared to Hemophilia Camp that was sponsored by Cincinnati Children's Hospital. It was his first time away from us not with family. We dropped him off on Sunday and didn't pick him up until Friday night! It was weird without him, but he seemed to have a great time and ALMOST self-infused his IV Factor. He's due to go to another Hemophilia camp next week in PA! Here's a pic of Jared and Jaime being reunited at camp after being away from each other for a week!

Once Jared was safely off to camp...we drove to Columbus, Indiana to visit the Adler's. You may remember that Jaime and Carter were in the NICU fighting CDH together. Well, here they are, reunited again! They both had a good time playing together...and it was GREAT to see Carrie and Jeremy again. Sooooooo wish we lived closer...I think the boys would be best of buds! While in Indiana, we visited Tom's alma mater, IU, too. It was my first time on campus and Tom's first time since the late 90's. It was fun to walk around there.

In other news, Tom and I celebrated our 10th Wedding Anniversary while out-of-town. We actually were at my sister's house in Columbus. She and her boyfriend had a delicious dinner for us and a cake that resembled our wedding cake in many ways! Thanks again, Titi and Michael...it was our best anniversary yet!

Here's us making an anniversary wish!

Anyway, that's our Cincy visit in a nutshell. I tried to make the update brief...so much has happened, but it's too hard to put all of it into one post! I will TRY to be better about updating in the future!

P.S. final note...I have to do my Thirty-One Plug...August brings us new specials! I am hosting a party at my house on Friday evening along with my friend who sells Scentsy. Please join us at 7:00 pm! 100% of the proceeds will go to Jared and Jaime's Hemophilia Walk Team. If you'd like to purchase a product off of this party you can do so at the following websites:  http://www.mythirtyone.com/shop/eventhome.aspx?eventId=E2029363&from=MYEVENTS for Thirty-One and https://shopwicklessscents.scentsy.us/Scentsy/Home for Scentsy. 
If you don't want to purchase anything and just want to donate to our walk team or join our team, you can do so at: http://my.e2rm.com/TeamPage.aspx?TSID=365970&langPref=en-CA

Thank you all for your continued support!