So, I don't have any "concrete" schedule yet, but.....it's been decided that we WILL go forward with surgery, but not until we go back to Cincinnati for a full surgical consult! We will be meeting with Jaime's surgeon, a plastic surgeon, GI, and hematology, as well as have a motility test done. OK, so why are we checking in with everybody? Well, Jaime's surgeon hasn't seen him since earlier this year, so I asked him to "eye-ball" Jaime to get a feel for what his incisional hernia is doing. We're consulting with Plastics, not so that Jaime can wear a Speedo without having a scar (tee, hee), but because Jaime's surgeon wants their opinion on how to construct the closure of Jaime's hernia. Jaime may or may not have some sort of connective tissue disorder, we're hoping plastics can shed some light on this for us. The suspicion comes from the fact that Jaime reherniated within months of being repaired...additionally, got an incisional hernia within weeks of being closed. Then, on the latest CT and x-ray, Jaime's current diaphragmatic hernia repair is starting to have changes, but from what I'm told, still looks in tact at the moment. All of this simply isn't "normal" considering all the precautions that were taken to repair Jaime appropriately. We'll consult with GI just simply to follow up from our July visits and have them arrange our motility test. This will test basically how fast food is moving through Jaime's digestive track. Finally, we'll meet with hematology. The surgeon said that Jaime will be hospitalized for 3 to 5 days post-op (baring any issues), but will need to have IV Factor Infusions daily, if not multiple times a day for at least 2 weeks post-op at home. Hence my title of this post!
This is a GREAT time to remind everyone that the Annual Hemophilia Walk is fast-approaching! It will be here NEXT WEEK! We need your help now more than ever! If Jaime didn't have hemophilia, his surgery and post-op risks would significantly decrease! The only way to find a cure, or better way to maintain normalcy in a hemophiliac is with YOUR HELP! Please take a look at the options below to see how you can help today! Remember no donation, is too small. (Even $1 goes along way...especially if EVERYONE donated just $1!)
1) You may donate in person or online at our Team Website.http://my.e2rm.com/TeamPage.aspx?langPref=%3FEventID%3D71091&LangPref=en-CA&TeamID=216534
2) You can participate in our Thirty-One Product Fundraiser. Everything is 15% off this month. The consultant has offered to match the hostess benefits and donate that money to our team. Check out the NEW FALL Products, GREAT for Back-to-School or to start stocking up on Christmas Gifts, especially at 15% off...you can't be that! Follow the link to view the items. Orders can be made online or in person through Wednesday, August 24, 2011. I have order forms available for your convenience, let me know if you'd like one. http://www.mythirtyone.com/shop/eventhome.aspx?eventId=E843088&from=MYEVENTS
3) Raffle tickets $5 a piece or 5 for $20 for a $200 Best Buy Gift Card. A great deal and a great way to help our cause! How many would YOU like?
Again, I do hope that you will help our cause, just as we have helped many others! Remember that all donations are tax deductible...and Don't forget to ask your friends and family to help this very important cause! Our team goal is $2000, we're half-way there!
Jared and Jaime thank you for all of the support you've shown them!
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