Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Thursday, June 24, 2010

14 1/2 Months Old/Privacy

First Wagon Ride 6/15/10
An evening Constitutional.


We've had such a busy week....mostly keeping up with Jared and his activities. Today, Jared had his 7yr well check (he's PERFECT-and the dr. couldn't believe how "ripped" his abs are, especially for someone so young). While we were there, I needed to get a growth check on Jaime. His current stats are 20.02 lbs (5th% for adjusted age) and 29 3/4 in. (20th% for adjusted age). So, in short, he's kind of at a stand still for growth. :( At least he's cute! :)
Jaime's been "eating" more things. I wouldn't say more volume, just new things. He ate 3 rigatoni's, a few baby spoons of baby soup (it's a new Beechnut product), about 1/4 pot sticker, 4 mandarin oranges, 1/2 of a banana, 1/4 of a chicken nugget and Nilla Wafers. Sounds like a lot, but this was over the last week or so. Other than some minimal spoonfuls of baby food and Gerber Puffs, Jaime's had nothing but Pediasure-Banana and Vanilla are his favorite. The Pediasure is the only thing giving him his calories, as all of the stuff he's eaten isn't enough to give him any calories to speak about. At least he's trying more things.
Earlier this week, Jaime and Jared had appointments at the Hemophilia Treatment Center. Jared had to get labs drawn, Jaime didn't. They accepted his labs from his admit in May. Speaking of...if you remember there was some concern with his low Factor IX level, well, in talking with the hematologist, he said that it's nearly impossible to have Hemophilia A & B, the two would counter act each other. He said his low number was simply age appropriate. :)

I think that's about all to report on Jaime...not much really going on with him, same old, same old! He continues to have therapists and nurses in and out of here about 4 to 5 times a week...the revolving door is open Mon.-Fri. (UGH!) I LOVE our home care team, but sometimes it's a bit much to have "visitors" every day!

Now on to the privacy thing...if you're interested in continuing to read our blog, please email me (pjtrost@yahoo.com) or Face Book me your email address. I am going to be making this blog "private" with limited access starting next month! We will be home a year in July....it's time to get some privacy back into our lives! I just want to regain some control of who views this info, I hope you all understand! :)
Thanks!

Until next time....

2 comments:

  1. well done jaime, it's all excellent you're trying new things even if they don't count as official calories, the 'tryin' is the big thing, Lewis is the same, doesn't 'eat' anything but plays with it and in amongst the playing he 'accidentally' gets some tastes lol xx
    Hayley xx

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  2. Sheryl, So good to hear both boys are doing so well. Jaime just gets cuter all the time, (who cares if he is a peanut). My grandson will be a year old next month, and he only weighs a little over 16 lbs. Braden is getting picky with what he will eat, but like Jaime, he's cute, and it is fun keeping him a baby a little longer! I get the biggest kick out of Jared, and all the neat things he does with Lego's. You have a beautiful family, and you are a wonderful Mom. God has truly given you a gift of strength. You amaze me, at how you always smile, and keep the faith, no matter what the situation.
    God Bless You!

    A Mom-Mom in NJ

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