Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Monday, June 28, 2010

Feeding Roller Coaster!

For two complete days, Jaime did not eat a single thing, he only had Pediasure. He literally refused EVERYTHING! Then, over the last 2 days he ate almost a whole container of mandarin oranges, 3 steamed carrots in cheese sauce, 2 tablespoons of Beechnut spaghetti rings in meat sauce (they're like Spaghettio's, but smaller), 3 graham crackers, a tiny piece of chicken and lots of Gerber Puffs. It's CRAZY! Again, this was all over 2 days and lots of "sittings" to eat. Like for instance, this picture shows Jaime eating mandarin oranges this morning, he ate 6 of them this feed...the most he's ever eaten! My guess is tomorrow, the day his speech therapist comes, he won't eat at all! HA! That's just the way it is around here!
Ooooo, oranges, my FAVORITE!
"I LOVE ORANGES!"
OK, that's what he would be saying if he talked better, instead he was laughing and screeching when I took this picture! (Notice all of the orange juice on him? HA!)


That's about all that's new! I just had to share! I am very proud of him! :)

On to other exciting news...Jared and Tom participated in Vacation Bible School all last week. Tom was the music director of the group. Sunday was VBS Sunday at church. The kids performed their music for the congregation. They did AWESOME! Here's a pic I took of the group in between songs! I really tried to get better ones, but it was difficult while holding a toddler and trying not to disturb them! Nonetheless, they were FABULOUS! Everyone really enjoyed their performance! We can't wait to see what next year's theme will be! Jared had a blast, as did Tom! (Jared's in the second row from the bottom in the blue shirt.)
That's about all for now...we don't have anything exciting planned for Jaime this week...just the normal, therapists and nurse visits. We are in the process of planning a "road trip" to Florida to visit Tom's grandma coming back up through Cincinnati for appointments. It's going to be quite the crazy adventure, I'm sure, but we're hoping to meet some CDH Families along the way!
Stay tuned......

2 comments:

  1. DaleJune 28, 2010 at 8:22 PM

    Sheryl, So good to see Jaime eating, even if it is just small amounts. Every little bit helps get some calories in that sweet little body. As long as he keeps it down, that is the important thing. He's so stinking cute, and has the most gorgeous eyelashes! I'm sure Jared did a great job singing at VBS. Makes a Mom and Dad real proud, and rightfully so! By the way, he was born on my wedding anniversary!!

    Hugs
    A Mom-Mom in NJ

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  2. Kathryn OlmsteadJune 29, 2010 at 7:35 PM

    I can completely understand this stinkin feeding roller coaster!! Kayla will some days eat anything I put in front of her, other days she refuses the same thing that she proved she loved before! Drives me insane!! Easy Mac seems to be my one constant.. however she will sometimes refuse that too! (not very often tho) :) Kayla LOVES those oranges too!! Peaches, pears, apples, bananas but NO NO NO veggies!! She is almost 16 months and weighs 20lbs!! I have a skinny girl- I don't know where she gets this whole "i don't want to eat" attitude as her father and I are NOT that way! haha I hope he grows out of it soon and just decides all food is good! :) Good luck!!

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