Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Friday, October 15, 2010

Another Trip to the ER

After dinner yesterday, Jaime spiked a fever...it was close to 103. I gave him Tylenol and called the pulmonologist. We were advised to give him some time for the Tylenol to work, if he didn't get better, then we were to take him to the ER. As you guessed, he didn't get better...here are pics of him before going to the ER.
Jaime being super clingy.
A cool drink to try and cool him down while we were waiting for the dr. to call us back.
We got to the ER, Jaime's temp was down to 101.8., but his heart rate was still high and his breathing was very fast. He was retracting a lot, too. They immediately put us in a room. (I did call ahead to see what dr. was on). They gave him 2 breathing treatments, suctioned his nose and swabbed him for RSV and the flu, then placed an IV, drew labs and sent him for a chest x-ray. While waiting for the results, he got IV fluids, IV steroids and IV antibiotics and another breathing treatment. Jaime's x-ray was unchanged from his Tuesday one and his flu and RSV were both negative...thank God. His labs came back abnormal with a high white count indicating an infection and he was slightly "dry." Jaime's temp slowly came down, at one point we talked about admitting him, but his breathing became under control, so we were able to be discharged. He was basically diagnosed with an asthma attack. The ER dr. said that his fever exacerbated his respiratory status causing him to ultimately have a full blown asthma attack.
Some pics of Jaime in the ER last night.
Breathing treatment #1.
Checking out his IV.
Jaime LOVED that caterpillar...it was the ER's...it was a GREAT distraction.
Jaime on the phone...AKA, pulse ox!
He was saying "Jared" in this picture, I think he was trying to call Jared on the pulse ox to tell him to come pick him up! HA!
Jaime is still on 6 breathing treatments a day, two of them being steroids, he's still on antibiotics-his ears are reportedly "getting better" :) and he's on an oral steroid, too. That one was added again last night. Jaime's not a huge fan of this steroid, as we've had a really hard time getting it into him today. He gagged and threw up this afternoon after just 1ml of 5mls. We put the rest in his sippy cup and he refused to drink it. Thank goodness it's only once a day...I don't know what I'm going to do tomorrow...hmmmm....T-4 days.
Here it is 24 hours later...and I have a new baby! He's still coughing and breathing fast on and off, but his temp is down and he's eating a little bit more. We've had good wet diapers and he's just overall more pleasant! I keep telling the drs. that steroids do this boy a world of good. Not that he can live on steroids, but truly they work wonders for him. (Of course the jump start IV steroids and antibiotics didn't hurt, either!:) My only issues is, I wish they would have done all of this on Tuesday, but Jaime was afebrile (didn't have a fever) then, so really there was no point.
Anyway, here are some pics from tonight! Jared and Jaime were playing with Jared's helicopter in the house...and having a blast, too! :)
Happy baby!
Happy boys!
I'm gonna get it!
Still trying to get it.
Jared turning it off...Jaime wanting to still play.
And finally I end with a picture of a candle we have lit tonight on our mantle to remember all of the CDH babies and babies everywhere who have gone before us. Keeping our CDH Family, my friends and family members who have lost their little ones, in our thoughts and prayers, on this Pregnancy & Infant Loss Remembrance Day.

2 comments:

  1. Jaime doesn't have things simple does he, so glad he picked up quickly and was able to be discharged, he looks very much like Lewis, in that nothing ever seems to bother him, always looking content. he's doin fab and he's super cute xx loving the helicopter too can i come play :)

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  2. (for some reason it's not letting me comment under my google account on your blog but lets me on others, weird blogger lol)

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