Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

Lilypie Birthday tickers

Lilypie Kids Birthday tickers

Saturday, October 9, 2010

Update & Jaime misses Cincy!

Jaime had quite a bad night on Thursday....waking up, screaming in pain. :( He threw up, too. I wasn't able to get Motrin in to him because he was gagging on it, but I did have my handy dandy Tylenol suppository back up. I hate giving him medicine that way, but truly it was the only thing that helped him. So, on Friday morning I called his pediatrician...she wanted to see him right away. She looked at his ears and said that if I hadn't have told her that he had completed a 10 day course of antibiotics, she would have never known. She said his ears are so bad, "bulging, bright red and full of pus." The crazy thing is, other than a few "bad" moments here and there, he's doing well. He was even being a little ham at the drs. yesterday...it was the first time the pediatrician and her nurses saw him walk....they were laughing and running up and down the hall with him, it was quite comical! Sometimes I forget that we're seeing a dr., she's so silly!
While we were there yesterday, she humored me and ordered a chest and abdominal series. She asked if he was reherniated again because his "bulge" was high and popped out. The x-ray showed that he was full of poo! Poor guy! So, we've concluded that his incisional hernia must be getting larger by the size and shape of it. We'll be seeing the surgeon (well one of his partners) in December. He didn't eat much on Wed. or Thurs, but did OK yesterday and well today...he ate 2 French toast sticks for breakfast with some apple juice, he ate about 1/4 cup of melons (watermelon, cantaloupe, and honey dew), and for dinner...well see below! Hence the reason Jaime misses Cincy! HA!





Tonight's dinner was the very first time ever that we took Jaime out without any food or drinks of his own. (In fact, I didn't even bring a diaper bag at all!) We knew he'd eat Skyline and since he learned how to drink through a straw, we got him a kiddie cup of water. Talk about a stellar eating day! :) No, his ears aren't better, he's still tugging on them a lot and whimpers while rubbing them on and off, but like I said, you wouldn't really know he wasn't feeling well. We'll be at the ENT's on Tues, everyone seems to think that tubes are in order, so we'll see!
More later...enjoy your weekend!

1 comment:

  1. Ugh - Jaime, Jaime, Jaime - there are better ways to get attention. How is he hearing? Tubes sometimes do not work well either. My oldest was an ear infection queen and they put her on a low dose antibiotic for the season and it worked wonders!

    I hope his eating better means he might be feeling better and the ears are getting better!

    ReplyDelete

Note: Only a member of this blog may post a comment.