Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

Lilypie Birthday tickers

Lilypie Kids Birthday tickers

Tuesday, February 9, 2010

Exciting News....

Jaime with his 1st walker/ride-on toy from his Godmother, Jenn!
Love his face looking at the bug!

I've been told today by Jaime's EI OT that he's in a "gross motor spurt." He's getting so mobile over, what seems like the last 2 weeks! :) Sitting unassisted, scooting backwards, walking in the walker...and so on! (No rolling yet, though, still going side to side.)

Jaime this morning practicing crawling.


She also explained to me that this "spurt" is prime time for "texture tasting,"too. She told me to try breaking up the puffs to see what Jaime would do with them instead of just crushing them up for him. Well, after eating a few pieces of the puffs...Jaime decided to go for the whole thing....and....he did AWESOME! I took many photos of him picking them up and putting them in his mouth. Seems like a small thing, I know, but this is pretty big in CDH world. We're all so proud of Jaime. He's FINALLY starting to reach some milestones. He's going to be 10 months, old, so I would hope that he'd be able to have a few under his belt by the time he is one.

Jaime eating puffs today.
Got one in & outside of his mouth.
Got it!
What are you looking at?
As for how Jaime's doing...I think he's feeling better. He's not coughing nearly as much, though his right lung is still junky...then again, with chronic lung disease, I'm not sure it will ever be "good." I am starting to come down with a cold (sneezing/sniffling), so I am praying to God that Jaime doesn't get it. We are due to see the Rainbow's pulmonologist on Thursday morning. Jaime has been off of his continuous O2 for the last 2 days satting between 95-99%...still not sure what Jaime's long term plans will be...we'll just have to wait and see what happens on Thursday. Speaking of pulmonologists, in my last post I spoke of seeing a Cleveland Clinic pulm., we are going to, but unfortunately his first available appointment isn't until March 1st. So, we'll get our "second opinion" at that point! Until then....enjoy the photos and video of Jaime over the last few days! :)
The boys, Jaime sitting all by himself.
Jaime showing off his new high chair seat.
He really likes it!

Chillin' on Mommy tonight watching American Idol.
(Jaime's an Ellen fan!:)


Hoping that everyone being hit by this giant winter storm stays safe and warm!

Until next time....

2 comments:

  1. *super dude and super dog*February 10, 2010 at 12:55 AM

    We have the same high chair (as does Jacob Tuley) and we love it. CONGRATS on getting Jaime to eat a puff!!!! That is HUGE. We know how difficult this can be and what a great feeling it is to see him eating something. Ask your OT about it, but we progressed to other foods with cheese doodles (under the direction of Carter's OT) b/c Carter likes to "do it myself" so he can hold the doodle and take small bites, but they dissolve much like puffs.

    ReplyDelete
  2. Jennifer TenneyFebruary 10, 2010 at 5:39 AM

    Congratulations on all the great progress! He's amazing!!!!
    Hugs,
    Jennifer
    Mom to Dakota 12-25-2008

    ReplyDelete

Note: Only a member of this blog may post a comment.

Subscribe to: Post Comments (Atom)