Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Wednesday, March 31, 2010

CDH Awareness Day 2010! :)

Spreading awareness about Congenital Diaphragmatic Hernia was the goal...so hoping we achieved it! A few special things that I did to spread awareness were handing out lots of ribbons and literature (thanks, Elizabeth) to the credit union, Jared's school, local restaurants and physician offices. Also, Jaime's EI therapists and nurses wore their turquoise! Jared brought turquoise awareness stickers to his friends at school and after school we had a mini balloon release in honor/memory of CDH'ers.
We'd like to thank our family, friends and Jared's school faculty for wearing turquoise today in support of Jaime and CDH'ers worldwide! We appreciate your efforts and support! Also, a special "thank you" to Darlene for hanging out all day today, it was great having you celebrate with us! :)

Here is a slide show of pics from our day and we've added some other CDH'ers who "celebrated" today as well! Enjoy! (If anyone wants to add pictures to our slide show of their "turquoise," I'd be happy add them, just email me, I will be putting the "final" slide show on the side of my blog later this week, thanks.)


If you want to watch the pics slower, you can just click on the "show" and view them in Picasa. (Thanks, AJ for showing me this awesome picture site many years ago!)

Enjoy the rest of your week! Tomorrow starts Spring Break for the boys! :)

1 comment:

  1. Love all the turquoise! Most of all Jared's sidewalk sign! :-)

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