Jaime playing with the O2 tubing...this was much easier when he wasn't as mobile!
The O2 concentrator is back! Jaime's respiratory therapist, Ted, came today to get us set up all over again. We decided that it would be best for Jaime to be on the O2 continuously at home, instead of on and off all day. Ted said it's not good for the machine to be on and off all day long, plus Jaime will get used to the cannula during the day again. He said we can go out without the O2 as long as Jaime's breathing is "stable." He is for the most part-sats are GREAT, but he breathes really fast, that's just Jaime...always has been, probably always will be! (He sounds like a puppy panting.)
One thing I forgot to mention yesterday was Jaime's eating. As you all know, we have some really good days...and others that aren't so good. Yesterday was a good day! He ate half of a giant strawberry, half of a vanilla pudding (those both over 2 sittings) and 5 pureed baby carrots from our turkey soup (actually, Nana's soup). Today, so far he's had 2 baby bowls of Corn Pops, plus his Pediasure! If he keeps eating like this, he'll be off of the O2 again in no time, of course this IS Jaime...and we ARE on the CDH roller coaster! HA!
Jaime just fell asleep...woohoo! Time for me to change the sheets....until next time....
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