Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Saturday, February 28, 2009

2-28-09-U/S Update



Hello All,

Well, after yet ANOTHER MARATHON scanning session...no real news to report! YEA!

I still have a lot of amniotic fluid, today it was 28.4, the dr. said that Jaime's stomach is "trying" to herniate up into his chest, but it's not fully there and he confirmed the no FRYNS.
Oh and he said that Jaime's "practice breathing" is perfect and he felt that that was a very good sign!
He even said, maybe things will be OK (other than the small lungs, of course) and to keep praying! We can all do that, right?

Here are some photos from today...UH's machines aren't as good as U of M, but you get the idea. I have to tell you that the first photo was taken after Jared said something silly. We told him that Jaime was putting his hands on his head saying, "Oh no, that's my big brother!"

It's nice to not hear anything new...time for us to relax until my next ultra sound in 2 weeks.

Keep the prayers coming...Doctor's Orders! :-)

Love,
Sheryl

9 comments:

  1. ElizabethFebruary 28, 2009 at 2:32 PM

    No news is good news! I'm glad you got to see him again!

    Keeping you all in my thoughts, prayers and Lung Function chants,
    Elizabeth

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  2. whitespaceFebruary 28, 2009 at 2:39 PM

    Breathe in, breathe out...take a break and relax, punky. -titi

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  3. StephanieFebruary 28, 2009 at 4:39 PM

    What a relief to not get any new news. The pictures are adorable. We're still praying for sweet Jaime!!! He's going to fight this one!

    Stephanie

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  4. Maxton's MommyFebruary 28, 2009 at 6:43 PM

    :-) sounds like a good appt. to me. Still thinking of you all!
    Ashley

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  5. Tracy MeatsFebruary 28, 2009 at 6:47 PM

    Jaime is adorable--love the new pics!! I am still praying for Jaime that he will be one strong little boy!! Jared is going to be a great big brother!!

    Hugs, Tracy Meats - mom to Ian, born with a LCDH on 4/3/04

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  6. Craig and Kristi KuehlMarch 1, 2009 at 10:32 AM

    Jaime is absolutely adorable!! Sounds like a great appointment...That is what to focus on:) We will definately keep the prayers coming...

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  7. AnonymousMarch 1, 2009 at 10:42 AM

    Jaime is so cute!!! We are keeping your family in our thoughts and prayers!

    Let us know if you need anything please.

    ReplyDelete
  8. FerMarch 2, 2009 at 7:44 AM

    I'm glad the scan went well, Jamie is adorable!

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  9. CDHi AdminMarch 3, 2009 at 9:29 AM

    Continued prayers for you all!!! Adorable u/s photos! :) If you need anything, we're here for you. You have over 2600 CDH families to draw info and support from at CHERUBS! :)

    Dawn

    CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
    http://www.cdhsupport.org
    http://www.cdhresearch.org
    http://www.ipetitions.com/petition/cdhawareness

    ReplyDelete

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