One Year Ago Today...

I cannot believe that it's been a year since I was called into my manager's office by the CEO and HR manager to be told that they were doing cut backs and that I was being laid off. I was totally devastated, especially since I worked for University Hospitals, who would have thought? It's so weird to think that I haven't worked for an entire year! Strange how things work out....

Now as for an update on Jaime...well, we're back to the NG. (Oh and for you Cincy folks reading this, I put the NG back in all by myself when Tom wasn't even home! Those girls know that I can't stand putting that darn thing in...let me do an IV on Jared any day, but as for the NG, that's Tom's job, HA!) Jaime hasn't gained any weight in days and he's throwing up often (my poor area rug has been cleaned more times than I can count). I have been able to avoid some of his vomits with suckers (I know it's strange, but it works). Sometimes, they just aren't handy and he throws up. He gags on baby food and sometimes just his spit makes him gag and throw up! Plus when he gasps for air during his apnea episodes, it will sometimes gag him. His feeds are so frustrating anymore. His speech therapist has referred us to ENT, we have an appointment on Thursday. In addition to that, she spoke with Dr. Hellerstein about changing Jaime's formula to Good Start. Jared had really bad reflux, actually it was much worse than Jaime's, anyway after trying multiple formulas with Jared, we found that the only thing he tolerated was Good Start. Hey, it's worth a try, anyway, right?

Back to basics....O2 and NG.

Moving on...I also discovered that Jaime is having an allergic reaction to the flavoring in his medication. He's had a few doses of it and with each one, I've been wondering if his face was swelling or if it was just me. Well, since the NG is back in, I put the medicine directly through his tube, sure enough, he immediately turned red and swelled! UGH! I called the pharmacy and the pharmacist was going to see if Anthem would pay their portion for us to get a new bottle without flavoring, if approved I would still have to pay my copay of $70. :( It's worth it if it makes him feel better, though.

On to more "fun" things...yesterday, Jared and Jaime received gifts in the mail from Aunt Janet. Sorry, Janet, they really wanted to open them, so I took photos! Thank you sooooo much! I can't wait for them to wear their outfits!
Here are the pics....

We are wondering if this is what Christmas will be like!

And lastly, who needs baby toys when you have a big brother?!? HA!

Just kidding, I need baby toys! These are a few of my FAVORITE things!

Oh, before I go, I wanted to pass along two "feeding" websites that Jaime's SP shared with me for any other CDH parent that's at their wits end with feeding issues.
1) www.new-vis.com
2) www.reflux.org
Hope some of the information helps all of us in some small way! :)

Time to go...stay warm, it's a chilly one!