Back at Home.

So, we've been home for two days now, Jaime and Jared are just fine...Tom, however definitely has the flu...BLAH! (I told him he has to stay in the basement until he's 100% better, we don't want his cooties on the main floor.)
Other than Tom being sick, I don't have any fun "drama" to report about the trip home like the first time we brought Jaime home from Cincy. It was much easier with him just having his NG. We stopped at Titi's to pick up Jared and that was it. (Thanks for watching Jared, Titi, he had a blast with you and David's Legos...by the way, he brought 3 of them home.) We did give Jaime a few "car seat breaks" but other than my sister's they were all done in the car. Tom would stop at a rest stop and I would take Jaime out in my lap to feed him. I didn't want to bring him into a "germy" rest stop someplace. It worked out just fine.
Jaime slept through the night the last two nights, but hasn't napped at all during the day. He is taking his bottles and food just fine. Actually, yesterday, on complete accident, I pulled Jaime's NG out...it got stuck on my shirt when I was putting him in the pack-n-play to nap. Needless to say, he screamed and didn't end up napping. Instead he had a bloody nose from the "trauma" of the NG being yanked out of his nose and had a bright red face from the duoderm being ripped off of it. I felt terrible. I left the NG out because of his nose bleed, ironically enough, since the NG has been out, Jaime has taken 100% of his bottles...actually, 30mls more yesterday and he ate 2 oz of sweet potatoes and 2 oz of carrots. He's doing great with feeds, we've got a scale and we're watching his weight carefully...with clothes and a diaper on, Jaime was 15lbs 4oz today, we know that's not accurate, but from that, we can tell that he has gained some weight. If he stops gaining weight or not eating well, we'll put the NG back in, but for now, we're going to let that nose of his clot and heal.
We weighed Jaime when his therapist was here. He had both PT and SP. The SP was the one who wanted him weighed. She gave me some feeding ideas to help him gain weight and she said that he has "low tone" in his jaw muscles which is why he "spits" his milk. Who knew!
PT didn't do all that much today because she had to "restart" his case since his recent hospitalization. Stupid paperwork!
Tonight, Jaime had a HUGE screaming, crying fit...out of nowhere. Reherniation will FOREVER be in the back of our minds when he does this. UGH! I HATE CDH! I hate even more that he went undiagnosed for so long, I'm sure he had some pain associated with it. I spoke to an ombudsman at Rainbow's about this today. Ironically enough, it was the same person I spoke to when Jared's hemophilia was misdiagnosed. She couldn't believe that such a thing could happen again to the same family. (Frankly, neither can we.)

That's about all...here are some pics from the last 2 days. Enjoy!

Jaime in an outfit Titi got for Jared when he was 3 mos. old.

Jaime in his favorite swing.

Still unsure about the Bumbo seat.

The Boys!

Chillin' on the couch.

Jaime checking out his 1st Christmas present from Grammy & Poppy.

Oooo, it makes noise, cool!