Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

Lilypie Birthday tickers

Lilypie Kids Birthday tickers

Sunday, October 11, 2009

Jaime came home yesterday.....

Sorry I didn't post yesterday, but it was quite a busy day. I took Jared to Ice Skating lessons in the morning....on the way the way there, Tom called and said Jaime was getting discharged in the afternoon. So, after lessons, we drove to Rainbows to get the boys. Is Jaime better...well, no, even his admitting nurse said so. He's exactly the same. The nurse said they wanted Jaime out of there because too many patients were testing positive for Influenza A...they are treating this as positive for the Swine Flu. Jaime is showing some signs of a "cold" so they put him on Tamiflu.
It's just been crazy. No, I don't want him to stay in the hospital, but I didn't want him to come home "unchanged" either. Unfortunately, the discharged occurred before I was even up there. His O2 is still up...in fact I had to put him up to a liter last night because he was satting low, breathing hard and had a heart rate close to 200. He's currently at 3/4, he's satting in the mid 90's with a heart rate around 180. (This is NOT Jaime's base.) He is normally on 1/4 liter O2 with high sats and heart rate around 140-150.
Oh well, such is life....
We have an NG again with a new feeding plan to bulk Jaime up. As I explained the other day, Jaime is to get 4oz thicken liquids every 3 hours while awake. If he doesn't finish the bottle, then we have to put the rest through his feeding tube. Then, at night, Jaime goes on the feeding pump at 59mls an hour for 8 hrs. Jaime is really close to 13lbs on this little plan. However, the Simply Thick is still giving him diarrhea...
Anyway, we're still planning our trip to Cincy on Wednesday...my mom's here to keep an eye on Jared for us while we go. Jaime has lots of "newly" scheduled tests in Cincy on Thurs. and Fri. since his latest admission here in Cleveland. Hopefully we'll get some much needed answers as to why Jaime's having these new problems.

Never a dull moment here!
Enjoy some pics from yesterday....first some of Jared at his ice skating lesson...this was the first time I got to go since last February. Jared's teacher said she's passing him to the next level up because he's doing so well! YEA, way to go, Jared! He absolutely LOVES ice skating...not everyone can say that they ice skate...and well at that! :-) (Unfortunately the pics were taken through the glass, so they aren't great, but you get the idea!)

Jared side skating with his right foot off of the ice.



Left foot swizzle...

Spinning!


Who's on the phone?

I think 2 boys missed each other!


Enjoy the rest of your weekend...it's a chilly one here!

1 comment:

  1. I can speak from experience, the Swine flu isn't fun, and you definitely don't want the boys to get it. Hollie has been miserable, but she's doing much better, thanks to Tamiflu. Love the skating pics.

    Sending lots of prayers!

    Love,
    Stephanie

    ReplyDelete

Note: Only a member of this blog may post a comment.