Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Tuesday, March 10, 2009

3-10-09 Awareness Days Coming Up!

Hello All,

I thought that I would invite you to "Save the Dates" for both CDH Awareness Day, which is coming up on March 31st, 2009 and for the 2nd Annual Hemophilia Walk which is set for August 29th, 2009.

We are asking that on March 31st, you wear turquoise to show your support for CDH Awareness. You may purchase "awareness" clothing at http://www.cafepress.com/breathofhope or donation info can be found at http://breathofhopeinc.com/index.php?option=com_content&view=article&id=6&Itemid=57.

As for the Hemophilia Walk, we just received the "Save the Date" email today. They are setting up a new donation site page, so more details are to follow!

Thank you so much for showing your support for both Jared and Jaime!

Love,
Sheryl

1 comment:

  1. Craig and Kristi KuehlMarch 10, 2009 at 1:33 PM

    I bought us all CDH awareness shirts from the cafe store--even bought a onesie for Kaden!! I contacted the local paper to see if they would do a piece to help raise awareness, but haven't heard back from them. I wish there was more I could do---especially being so close to UCSF...

    I hope things are going okay for you. I know I have really been an emotional mess worrying and praying for Max and Addison. I am not looking forward to the CDH rollercoaster, but know I am next in line for the ride :( I continue to think about you guys and pray for Jaime...

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