Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Friday, March 27, 2009

CDH Awareness Day, March 31st.


This is just a reminder that CDH Awareness Day is March 31st.
There are some CDH families doing a balloon release in honor of their CDH children, on Tuesday, we plan to do the same thing!
The color for CDH Awareness is turquoise, so please wear turquoise on Tuesday, March 31st, 2009 in honor of Jaime and his upcoming fight with CDH.

If you'd like to make a donation towards CDH in honor of Jaime, you may do so at the following website.
http://www.breathofhopeinc.com/

Thank you so much and don't forget to sport your favorite turquoise clothing on Tuesday!

Love,
Sheryl, Tom, Jared and "Jaime"

P.S. If you send us photos of your turquoise, we'll post them in a slide show on our blog! Thanks!

3 comments:

  1. StephanieMarch 27, 2009 at 2:08 PM

    I will definitely be wearing turquoise that day. I want everyone to know about this horrible birth defect.

    You're getting so close. I'm thinking of you!!!

    Stephanie

    ReplyDelete
  2. Craig and Kristi KuehlMarch 27, 2009 at 9:02 PM

    We are right there with you...I ordered us all shirts from cafe press--I even had Logan's school picture taken in his!! I'm sneaky that way :) Sounds like you are feeling better--I am thinking of you and praying that Jaime will decide that he can stay put for a while longer...

    ReplyDelete
  3. SusiePMBMarch 30, 2009 at 7:34 PM

    I plan on doing this too!
    Jaime is continually in my thoughts and prayers. Be strong and positive and I know he'll be a little miracle. HUGS!

    ReplyDelete

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