Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

Lilypie Birthday tickers

Lilypie Kids Birthday tickers

Thursday, March 26, 2009

Hemophilia Black and Blue Ball

It's that time of year again...the 4th Annual Hemophilia Black and Blue Ball is just around the corner. Tom's band, Abby Normal and the Detroit Lean will be the entertainment for the evening. It's Friday, May 15, 2009 at Windows on the River! Hope you can make it! :-)


http://www.nohf.org/NOHF/special_events.htm (Hemophilia site)

www.abby-normal.com (Tom's band's site)

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