Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

Lilypie Birthday tickers

Lilypie Kids Birthday tickers

Wednesday, August 5, 2009

Last Minute Change of Plans...

So, we're in the van...yes, I said van...on our way to Titi's house. Why are we going there you ask? Well, we are heading to Cincinnati tomorrow for a few appointments and tests. It's been decided that since Jaime's having some unforeseen issues, that it be best we go to Cincinnati for follow up. Since Jaime doesn't travel very well, we decided to break the trip up a little. Not only that, we went to Rainbow Babies and Childrens' Hospital this afternoon and got Jaime a car bed. What's a car bed? Well it's like a mini bassinet with a harness and straps to belt it into the car. This is a photo of Jaime riding in it on the way home from Rainbows.

Why do we have a van? Well, we rented one to bring all of Jaime's equipment along. We didn't think that we'd have enough room in the wagon for 5 giant O2 tanks, both of Jaime's car seats (we're suppose to trade having him in them on and off), his monitor, plus the stroller, pack-n-play, and all of the normal travel stuff for us and Jared. So, we rented a van today. Lucky for us, this one was just turned in this morning. Every one else was sold out.
Moving on...Jaime had a chest x-ray yesterday that was his "baseline." It wasn't perfect, but it wasn't horrible either. Since he's still having the breathing issues...including a few brady/desats, Cincy wants to see him tomorrow. He will be having an echo to determine if he'll need a heart cath or not and he will also be having lots of blood work. Since we will be down there, hematology will be seeing him as well.
So, that's my update! Jaime's crying, we're at a rest stop...until tomorrow.

6 comments:

  1. AnonymousAugust 5, 2009 at 7:20 PM

    Lots of love & prayers for all of you!
    Jeanie & Ryan

    ReplyDelete
  2. Bev LAugust 5, 2009 at 7:36 PM

    I hope that you all find the answers that you need to help Jaime through this bump in the road or is it the ups, downs, twists and turns of this CDH rollercoaster ride.

    Bev

    ReplyDelete
  3. Sue mom to Emily LCDH 1-22-08August 5, 2009 at 8:48 PM

    I sure hope the stop over at your sister's helps Jaime, along with the travel bed. But couldn't you have waited until we get to Cincy so we could finally meet? :>

    ReplyDelete
  4. Pastor Eric LinthicumAugust 5, 2009 at 10:50 PM

    Call me!


    Prayers are being offered for safe travel and a successful visit.

    Oh and CALL ME!

    Pastor Eric

    ReplyDelete
  5. ShawnAugust 6, 2009 at 6:05 AM

    Hey guys, Stef and I are thinking of you all and hope the appointments went well and give you some solid answers to work from.
    Take care,
    Shawn

    ReplyDelete
  6. Dale and MajkenAugust 6, 2009 at 7:11 PM

    Majken and I are praying for all of you. Be safe, and be strong. There are many hurtles to jump over - this is hopefully a small one. May God Bless you. Love, Dale and Majke, little Joe and the Mom's. P.S. I still have the house key, let me know if you need something done - Dale

    ReplyDelete

Note: Only a member of this blog may post a comment.

Subscribe to: Post Comments (Atom)