Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Sunday, September 20, 2009

Giggles and Hiccups



I couldn't resist posting this...I hope that you all can view it...let me know if you can't!
This afternoon, both Jared AND Jaime had hiccups....just at different times. Both thought the other was hysterical. So, here's a mini clip of some silly laughter from our Rainbow's room this afternoon! Tom and Jared were up visiting for a few hours. Jared apparently is "Star Student" this week, so we did a poster and his homework together up here...now if only he can remember to bring everything back to school tomorrow...tee, hee!
Here are some pics we took this afternoon.

Our view from Jaime's room: one of Case University's research buildings.


Daddy and Jaime during "giggle fest, 2009!"


Jared eating dinner at his "desk" in Jaime's room.


Jared coloring on the giant dry erase board in Jaime's room!


Enjoy!

Current Jaime status...he's asleep. He has been waking up on and off with screaming/coughing fits, then goes back to sleep. He just had a breathing treatment and a bottle. He gagged a lot...even choked once...SCARY! Michelle suctioned him and put him on his cool mist humidifier, I kind of like this on because it helps me, too! He got Tylenol and we were hoping that he'll be down for the night, however, Michelle just came in and told me that Jaime took in only 345, but his output was like 295 today. (He should take in at least 550, he SHOULD be closer to 700, though.) So, she's paging the dr. to see what we're going to do...IV fluids or NG feeds. Jaime is just too congested and tired to eat. Chances are Jaime will NOT be going home tomorrow....he's just still too ill not to be monitored here. (Of course, he could wake up feeling great, who knows!)

That's my final update of the evening...enjoy the pics and mini-clip!

Good night!

2 comments:

  1. Poor little Jaime, still not feeling well enough to eat. Hopefully whichever method the doc chooses to feed him helps him to recover faster. We always feel better with a full tummy! Enjoy your view for another day, or more.
    Sending hugs!

    ReplyDelete
  2. Loved the hiccups and giggles! I hope he feels much better very soon. Not long from our own hospital stay. Not fun!

    With thoughts and prayers,
    Elizabeth

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