Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Tuesday, July 14, 2009

Jaime Trost...Day of Life 90!!!

Today, Jaime is 90 days old. He had a great day! He's still on his 1/2 liter O2, which has done him a world of good. He drank 100% of his bottles since adjusting his O2, too. He has his ph probe in until tomorrow morning...you can see the extra tube in his nose and the black box in the photo. The box is recording his reflux. Dr. Lim said we should have the results in by Thursday at the earliest. If all goes well with this test, home may be in the near future. :-)



As for Jared, he's doing very well. It was a nice warm day here in Cincy, so after we gave Jaime his 1:00 P.M. bottle and put him down for a nap, we took Jared to the Florence, Kentucky Aquatic Center(recommended by Jaime's nurse, Kristy...thanks, Kristy, it was sooooo much fun!)




After the pool, we had dinner, then went back to the hospital to feed Jaime his 7:00 P.M. bottle. Jared wanted to try and feed Jaime, this was his very first time. It lasted until Jaime coughed once and Jared thought he was going to throw up and asked me to take him...HA! By the way, Jaime never did throw up!



After Jaime finished his bottle, Jared got his Factor. Cleveland sent his Factor and supplies to the RCNIC in Cincy for me, so I just gave him his IV there. Once I did that, Tom and Jared went "exploring" and I put Jaime to bed. (He went to sleep with his Monkey Wub-a-nub.)



We stopped at Graeters for some ice cream before heading back to the hotel. That's where we're at now. Shirley has Jaime again, so we know he's in good hands!

I'm off to try and get some homework done. Have a nice night.

Sheryl

P.S. Please send some positive thoughts Carter's way as he is having another procedure tomorrow, thanks!

P.P.S. Reminder: the Hemophilia Walk is just around the corner! Please visit our team page to donate or to join our team and help us fund raise today! Thanks!
http://my.e2rm.com/TeamPage.aspx?Lang=en-CA&TSID=239254

1 comment:

  1. Glad Jared is doing well and discharged! Loved him feeding Jaime! He will be an old pro at home within a week! Both will come up missing to Jared's room!

    I hope that little black box brings good news too!

    Keeping you all in my thoughts and prayers,
    Elizabeth

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