Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Saturday, April 25, 2009

20 Days in Cincy











Well Folks, today was our 20th day in Cincinnati....can you believe it? We can't!
So much has happened in the last 3 weeks. From two moves back to back, to 10 OB appointments, lots of bedrest, Easter with a visit from Nana & Papa, 2 procedures and then the surprise arrival of our little Jaime! A 5 day hospital stay for me, 2 visits from Titi and Grammy, a visit from Uncle Scott and 3 trips back and forth to Columbus for Jared and another visit from Nana. All the while, Tom being the runner and the one "holding down the fort"-he's been great! Driving the streets of Cincy is becoming all to familiar and we honestly feel like this is "home." We hope and pray to keep this home for a long while...or at least long enough to bring Jaime safely home to Cleveland!

As for Jaime, overall he had a good day! He only had one little issue after a diaper change caused him to have the hiccups which led to some de-sating and a need for intervention by his nurse and the R.T. He did much better after a little suction, a position change and some Versed. Oh and the icing on the cake was Mr. Jaime had his first, second and third poopie diapers today! This is a really great sign because even though his bowels are in his chest area, they are working properly!
Tom and I missed rounds this morning, we all decided we needed hair cuts, so that's where we were when the docs came around-rounds are "anytime" on the weekends, so it's hard to judge when they'll be. Anyway, I did speak with the NP who told me that the docs were thinking that surgery will be happening next week. She said that one of the cardiologist's thought that the last echo read on the borderline of sub-systemic-that's where Jaime needs to be for surgery. So, the bottom line is everyday we are getting closer and closer to his repair.

Jaime had lots of visitors today, both of his Grandma's visited. What's special about that is Grammy (my mom) is visiting from Maryland and Nana (Tom's mom) is visiting from North West Indiana. Titi (my sister) came for another visit, too!
Jaime's a pretty popular Cat, Jared is, too! :-)

Here are some pics from yesterday at the aquarium, Jared doing Jaime's mouth care with Casey, Nana's visit and Jared's tent under the cabinet.
The pic of Jaime "alert" is from today!

Enjoy the photos!

Hugs,
Sheryl

4 comments:

  1. Sheryl thanks for stopping by Ava's blog and for taking the CDH survey. Your little peanut seems to be doing well. Prayers always. Isn't amazing the strength they exube?

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  2. Oh Sheryl, I can't tell you how good it is to read his progress and how well he's doing. I'm so happy for y'all. Love the pictures too! We won't stop praying. Your strength is so admirable.

    Love,
    Stephanie

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  3. I'm so happy to hear how well Jaime is doing!! He is just amazing! How wonderful that you were able to hold him early on and didn't have to wait forever. That must have meant the world to you guys. Thinking of you and just wanted to let you know I read Jaime's updates every day!

    Jen

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  4. Have I said how adorable Jaime is? Well he is. Glad everything is going well - and they are letting him lead this dance!

    With thoughts, prayers and Lung Function chants,
    Elizabeth

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