Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Thursday, April 9, 2009

4-9-09 Appointment, Surprise & Thank You's!


So our day started at Good Sam's with a very long NST...Mr. Jaime was wiggling so much that the nurses couldn't get a good strip on him. Then, I had another ultra sound to check my fluid...well, that's up to 34cm, AGAIN! This is exactly where it was when I had the reduction at 29wks. I talked to my nurse, Steve, about this, he's not sure the drs. will drain me again, but I am having a lot of contractions...and with minimal movement, too. My next set of appointments are on Tuesday.

Now, as for the surprise....we were called into Steve's office in between my appointments to find a Skype Webcast set up with Tom's St. Anselm students on the other end. They weren't the only ones there, Fox 8 Cleveland, news anchor, Wayne Dawson was there, as well. Clarissa Saar, a 5th grader at St. Anselm, nominated Tom for Fox 8's "Pay it Forward" segment. Wayne Dawson gave Clarissa 8 $50 bills to "pay forward" to Tom, for us to use towards Jaime's medical expenses. This was coordinated by Steve Imhoff (RN @ Good Samaritan Hospital in Cincinnati), Kerry Kawa (computer teacher at St. Anselm), Joan Agresta (principal at St. Anselm) & the Fox 8 News Crew. This will be aired in Cleveland, but we don't know when as of yet. I will post the date and link to it when we know for sure!
Not only did Clarissa do this for us, but yesterday the entire school had a "Mr. Trost Dress Down Fundraiser." Here is a picture of the students from this morning's webcast. We can not thank them enough for what they and Fox 8 did for us today!

The "Thank you's" do not stop there, Tom and I would like to personally thank the following people for the generosity they have shown to our family.

Frank & Karen Buttari, Al & Ann Trost, Stacy Buttari, Scott & Jess Buttari & Family, Karen & Carmen Buttari, Edel Carnicelli, Colleen & Ed Smith & Family, Jennifer & Rich Wojtasik & Family, Jim & Cindy Hall, Debbie & Dusty Blechman, Leslie & Jeff Moder, Dale & Majken Casamatta, Frank Adams, Mike Humphrey, Dan Hannan, Pastor Robert Schuler, Linda Urban, Claudia Lund, Denise Simantle, Jamie Wollschleger, Dr. Jane Corteville, Dr. Sandhia Varyani, Dr. Leigh Josie, Anthony & Kay Mueller & Family, Scott & Maureen Kelly & Family, Mike & Donna Spies & Family, Kim & Anthony Porter & Ariel Minardi, Bill & Janice Babiak & Family, Herbert & Marie Giesler & Family, Craig & Sandy Madden & Family, Dr. Michael & Diane Anderson & Family, Mark & Denise Granitto & Family, The entire St. Anselm 8th Grade Class, Kathleen & Heather Sabruno, Jay & Sandra Kauffman & Family, Stephen & Elizabeth Tompkins & Family, Diane & Richard Monreal & Family, The Balderas Family, The Heisler Family, Whitney & Arlene Slaght & Family, Christina & Patrick Fink & Family, The entire St. Felicitas Faculty, Gregory & Marianne Kapel & Family, John & Angie Didovic & Family, The Students at St. Mary, St. Felicitas, and St. Anselm schools, The MusicAlliance Honor's Jazz Band Students, MusicAlliance Inc, Fox 8 News in Cleveland and many others who have helped us anonymously.


Everyone has been really supportive of us, you will never know exactly how much that means to us! We miss you all and wish you a blessed Easter Weekend.

Love,
Sheryl, Tom, Jared & "Jaime"

4 comments:

  1. This comment has been removed by a blog administrator.

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  2. Isn;t it amazing how many people come out in support during difficult times. I know for us we had SOOO much support, it was amazing. Little Jaime has already touched so many lives... hope they don't have to drain the fluid again!
    Ash

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  3. Your family has quite the following. What an amazing list of supporters. I look forward to seeing the tv news clip.
    BTW Steve I. is a great guy. I also got to meet him several times while at Good Sam's. You and Jaime are in such good hands!!
    Hugs,
    Sue

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  4. What a great surprise! Schools are such amazing supporters. My husbands school did several fundraisers for us while our daughter was in the hospital. Continuing to pray for Jaime's strength.

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