Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Saturday, April 4, 2009

Last Night in Cleveland

T’was the night before Cinci and all through the house, not a creature was stirring, not even a mouse. The bags were all packed in the Subaru with care in hopes that the traffic will be light and clear!
Jared is nestled all snug in his bed, while Tom is out gigging with drums in his head. And I on my couch with my computer on my lap, having just settled down with a little night cap (chocolate milk).

Ah, if only this perfect little story could last forever, however, we know that the next few weeks will bring a whirlwind of events. We are not overly excited about starting this chapter of our CDH journey; I think the correct word would be anxious. We just don’t know what’s going to happen; it’s all of the uncertainties that are creating all of the anxieties. What Tom and I do know is that we feel we’ve chosen the best center available to us to care for our little Jaime. We also know that no matter what, we will have no regrets!

Thank You’s
We’d like to thank our doctors here in Cleveland for helping us get to this point with minimal complications and for sending us to Cincinnati for a second opinion.
Special “Thank You’s” go out to all of Tom’s schools and employer (St. Felicitas, St. Clare, St. Anselm, St. Mary’s in Chardon and MusicAlliance); your generosities have meant more to us than you will ever know!
We’d also like to thank our church community and friends, both personal and virtual for all of their cards, emails and prayers.
Lastly, we’d like to thank our family for all of their love and support! We couldn’t have come this far without any of you!
Here’s hoping that Cincinnati allows us to bring our little guy home one day for all of you to meet!

Signing off from Cleveland for the last time while Jaime is still safe inside me!

Happy thoughts to all and to all a good night! :-)

Sheryl

4 comments:

  1. Sheryl,
    I to love to end the night with a "night cap" LOL!! I will be saying many prayers for your family. Extra prayers for Jaime!! I wish nothing but the best for you and your family.
    Christy Michel

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  2. We are thinking of you here in Nashville and hoping you guys have a smooth start to the new CDH journey chapter... here is to hoping the "real start" doesn't come for a while! :-) Take Care and enjoy your night cap!! :-)

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  3. Sheryl, thinking about you and saying lots and lots of prayers! If you need to talk or have any questions, please do not hesitate to call!

    Dawn
    http://www.cdhsupport.org

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  4. Have a safe trip and our prayers, as always, are with you!!!

    Love,
    Stephanie
    Brooke and Kamryn's Mommy

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