Jaime Albert Trost was diagnosed with Right-Sided Congenital Diaphragmatic Hernia at 19 weeks gestation. He was born at 34 weeks gestation on 4/16/09 as a hemophiliac with his liver and intestines in his chest. Jaime had his 1st repair surgery at 23 days old. He re-herniated in September 2009, causing his bowels, kidney and liver to be up in his chest. He had his 2nd repair surgery at 194 days old. Though Jaime still has many medical challenges ahead of him, today he is a thriving KINDERGARTENER who has beaten the odds!

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Thursday, April 16, 2009

Amnio Reduction/Jaime's Birthday



Hello All,
I know that many of you have been waiting for a post from us, so here it is!

Yesterday, was VERY eventful. It took a very long time to get the amnio reduction. I finally had it at 6:00 P.M. Dr. Brady removed 5 liters of fluid from me. I felt pretty good after the procedure. I went from 42.32 cm to 6. However, Mr. Jaime didn't like the procedure.
About 1:00 A.M. they decided that it was time to take him, so they prepped both Tom and I for the OR. I had a c-section and delivered Jaime at 3:58 A.M. today (4-16-09). He is 34wks. gestation and was 5lbs 10oz. I do not have a height yet, as I wasn't given one!
He did not cry, nor was he blue. They got him semi-stable in the NICU here at Good Samaritan Hospital (that's where I'm at). Then, they transferred him to Cincinnati Children's Hospital, where at last call, he was stable. Tom went over there and took some photos of him. I am going to post all of the photos so far in a slide show on the side of the blog.
Dr. Lim, Jaime's surgeon said that Jaime's lungs look a little better than anticipated, thank God. Let's hope that we're not in the "honeymoon" stage and that Jaime stays on the incline to stability!

We ask that you continue to pray for our little guy as he embarks upon his CDH journey.

Thank you so much,

Love,
Sheryl & Tom

23 comments:

  1. I am praying for an uneventful CDH journey. Hopefully he will coast through the procedures and be home in no time.

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  2. Very eventful day indeed! Congratulations and welcome to the world Jaime!

    I had been seeing that there were no updates from Tuesday and figured something was up.

    You are in our thoughts...be strong and keep us posted. We will be down there in a few days ourselves and our little Carter may be here within a week or so.

    Jeremy & Carrie Adler

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  3. Congratulations! Jaime is adorable!
    You are in my thoughts.

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  4. We are thinking about you and praying that Jaime is strong and stays stable. We will be looking for updates. Let us know if you have any questions since we are going through a lot with Kaden right now.

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  5. Happy Birthday Jaime!!!
    So glad to hear that he is doing well and that his lungs are better than expected. Jaime is in very good hands with Dr Lim and the RCNIC staff. Looking forward to seeing more of your beautiful son!!!!
    Take good care of yourself.
    Congratulations!!
    Love,
    Sue & Emily

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  6. WOOO! Happy Birthday Jaime!!!! :-) I will be praying for him to continue to remain stable. Hang in there guys... he is ABSOLUTELY beautiful!! :-)
    Ash

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  7. He is so gorgeous!!!! Many prayers that he continues to hold his own. He is a tough little guy and is lucky to have you for parents! All our best.

    Shelley & Billy

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  8. He is adorable! Praying he continues this steady course. Keep up the good fight Jaime! Stay strong Sheryl and Tom! Keeping you all in my prayers!

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  9. So happy to hear the good news so far. Our thoughts are with you.

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  10. Happy Birthday Jaime! Wow - he is a good size too! Great things come in little packages!

    With thoughts, prayers and Lung Function chants,
    Elizabeth

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  11. Sheryl & Tom,
    He is absolutely darling! Congratulations!
    Please let me know if you need anything, I'm a phone call away!
    Our thoughts & prayers are with all of you.
    God bless little Jaime!

    Jeanie & Ryan

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  12. WOW, he is adorable. A great size too for how early he is. Keep fighting sweetie, you can do it!!! Congrats mum and dad! Saying lots of prayers for Jaimie

    Kristy, mum to Angel SKYLA

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  13. OH MY GOSH!!!! He is beautiful! I am praying for you all!! He looks like a fighter! I hope you are feeling okay after the c-section. Take care of yourself and I will look forward to more good updates!!
    Carrie and Noah

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  14. Oh my gosh, Jaime is absolutely gorgeous! Happy birthday little guy!

    Hopefully he'll be heading back home to Cleveland very very soon! My thoughts are with you all, and Congratulations!

    Love,
    Mary

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  15. Oh my gosh, is he not the most beautiful baby boy!!!!! I'm glad to hear that he's stable, and we'll be keeping a close eye on your blog. Praying for a strong fight!

    Love,
    Stephanie
    Brooke and *Kamryn's Mommy

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  16. Congrats! Happy Birthday Jaime! We will pray for him to continue with his stable pace and that he will continue to move forward!

    Amy Miles

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  17. Welcome to the world, Jaime! We are praying for you little man!

    Jen

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  18. he's gorgeous! congratulations on Jaime's arrival. i hope his CDH journey is a smooth one. we are praying for him.
    Joanne and John Michael R-CDH 3/11/07

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  19. Wow this was so crazy reading your story realizing you were at Cincinnati Childrens with Dr. Lim! Our son Kayden was born in October 2008 with CDH and Dr. Lim repaired him, and were VERY happy to report he had the muscle flap surgery and is perfectley healthy with no health promblems now at 6 monthes! So i hope you guys no your in Great hands! We loved everyone there! Please feel free to call or email me anytime when you need someone to talk to or ask a question about. Oh yes and we stayed at the RMH to! Have you met Cici yet shes great! Happy b-day Jamie hes beautiful! My email is nikkiandjosh_06@hotmail.com 260-350-3709 indiana number-my name is nikki by the way. These first couple of weeks will be rough but they WILL get better, just stay positive! Our son kayden has a carepage his display names kaydenjameslee

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  20. Congratulations guys!! He looks great! We are praying for him. Take care of each other.

    Cath, Steve, Nick & Lauren

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  21. Congratulations!!! Welcome to the world Jaime!! He is pretty good size for 34 weeks and sounds like he is strong and fighting. Jaime is beautiful and look at all that hair!! Praying for Jaime in the weeks to come.

    Hugs, Tracy - Ian's mom from CHERUBS

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  22. Congratulations! He is adorable! Praying for Jaime.

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  23. Congratulations!! He looks precious and what impressive hair.

    We are looking forward to meeting Jaime. You are all in our thoughts and prayers.

    Chloe wants to send hugs to the new big bro, Jared.

    Paula, Mike, Chloe, and Connor

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